LIST OF ORGANISATIONS WHO CAN SUPPORT FAMILIES OF CHILDREN WITH SEND 

 

 

National Autistic Society:

Information for parents, carers and guardians of people with an autism spectrum disorder. This information is also suitable for grandparents, aunts, uncles etc. Telephone helpline - 0845 0704004 Website - www.nas.org.uk

 

 

Downs Syndrome Association:

Provide information and support for people with Down's syndrome, their families and carers, and the professionals who work with them.

 

Telephone Helpline- 0845 230 0372     

 

(open 10am -4pm Mon - Fri) Website http://www.downs-syndrome.org.uk

 

 

 

Scope:

offer information, advice and support to disabled people and their families

 

Tel - 0808 800 3333

 

Website - http://www.scope.org.uk

 

 

 

Afasic:

In 1968, to help these children and young people who are affected by the hidden disability of speech, language and communication impairments.

 

Tel: 0845 355577 ( open Mon - Fri 10.30am - 230pm)

 

Website: http://www.afasic.org.uk

 

 

 

National Blind Children's society:

Supports parents of Visually impaired children and young people

 

Tel: 01278 764 764

 

Website: http://www.nbcs.org.uk

 

 

 

SENSE:

Is the leading national charity that supports and campaigns for children and adults who are deafblind. We provide expert advice and information as well as specialist services to deafblind people, their families, carers and the professionals who work with them. We also support people who have sensory impairments with additional disabilities

 

Tel: 020 7520 0999 Website: http://www.sense.org.uk

 

 

 

National Deaf children's Society:

Support for families of deaf children and young people

 

Tel 0808 800 8880

 

Website: www.ndcs.org.uk

 

 

 

Mencap:

Is the voice of learning disability Every day, they support thousands of parents. carers and people with a learning disability. 

 

Tel: 02074540454.

 

Website: http://www.mencap.org.uk

 

 

 

National Society for Epilepsy:

Are the leading national epilepsy medical charity working for everyone affected by epilepsy

 

Helpline- 01494 601 400.

 

Website - www. EpilepsySociety.org.uk

 

 

 

Muscular Dystrophy:

Provide free and expert information to anyone affected by muscle disease. Our telephone and email Information Service offers support and signposting to anyone with questions about muscle disease

 

Tel 0800 652 6352

 

Website: www.muscular-dystrophy.org

 

 

 

Cystic fibrosis Trust:

National charity in the United Kingdom which funds research into the disease and provides information and support for patients and families

 

Support helpline: 0300 373 1000,

 

Benefits helpline: 0300 373 1010,

 

Welfare helpline: 03003731020.

 

Website: http://www.cftrust.org.uk

 

 

 

Contact — a — family:

Is a UK charity for families with disabled children

 

Free Helpline -0808 808 3555.

 

 Website - http://www.cafamily.org.uk

 

 

 

Dyspraxia Foundation:

Helps people to understand and cope with Dyspraxia. Offers families information, support groups and local coordinators around the country

 

Tel: 01462 454986.

 

Website: www.dyspraxiafoundation.org.uk

 

 

 

Advisory Centre for Education (ACE):

Is a national charity that provides advice and information to parents and esters on a wide range of school-based issues

 

General advice line: 0808 800 5793.

 

Website: www.ace-ed.org.uk

 

 

 

IPSEA (Independent Parental Special Education Advice):

Is a registered charity offering free and independent advice to parents of children with special educational needs in England.

 

General Advice Line: 0800 018 4016 (Mon to Fri 10am - 4pm), plus Mon to Thurs evenings 7pm - 9pm.

 

Website: http://www.ipsea.org.uk